Research (Ours, Others and News)

Our Research Projects, Others Research Project, News about Research

Research in the News

Our Research Efforts

Affiliated and Other Orgs

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    1. Why is it named BPRS?

        • BRPS is a VoAFP observational study asking hundreds of thousands of patients who have been diagnosed with Atrial Fibrilation from all walks of life, from all demographics, from all regions, of all ages and all income levels to complete this massive study.

    1. Is it really a study?

        • Yes, this is an population observational study from millions of AFib patients as we are gathering information from all patients regardless of population type or age or gender and taking the pulse of the U.S. population, eventually globally, of all patients suffering from Atrial Fibrillation
        • We intend on analyzing the major issues reported across all segments of patients, all different types of treatments, issues with availability of types of medical providers and available treatments.

    1. Why should I participate?

        • Without your participation we have one less voice, one less issue not addressed, one less major participant, YOU, to add to the hundreds of thousands.

    1. What kind of information is being asked of me?

        • We ask about what affects AFib has on your Quality of Life.
        • We ask about the make-up of the clinicians or care givers who see you to help cure or manage your AFib
        • We ask about medication issues, treatment Issues, procedure issues that may have risen and that may not have worked well.

    1. Is it safe and secure in sharing my information?

        • All of your answers are safe and secure and will not be shared or sold
        • All of your responses are anonymous, unless you want to share you information at the very end of the survey
        • The purpose of the survey and the study is NOT to collect your information it is about collecting large amounts of data from which to take the pulse or what is working and what is not working when it comes to the cure or management of AFib and comorbidities. 

    1. What will I get back after taking the survey

        • VoAFP intends to develop a host of tools and services to help you as you continue your journey living with and hopefully resolving your AFib.
        • We are working on a Patient Tool Kit providing you with the questions and the materials to help you organize your efforts with your care team.  What to ask, how to ask it, what answers you need from your care team, what next steps to take if you are not getting the answers, you expect or understand.
        • We are planning two training programs
        •        PACE(Patient Advocates for Clinical Engagement)
        •        PARE(Patient Advocated for Research Engagement)
      • We are even working on an Atrial Fibrillation Patient Mobile companion, AFib Connect ™ to give to patients to be able to record events in everyday life of the patient between clinical visits with your care team.
      • It is rather amazing that there is not more effort to understand what is happening to you day in and day out between visits.
      • We are looking at the integration of mobile devices to help convey more accurately what is and can be captured and presented to you care team between visits to give them a more comprehensive view of what is and how your Quality of Life is impacted on a daily, weekly, monthly our yearly basis. 
 
Easy to take the survey by clicking on the links for English or Spanish